Oh yes, I did forget the big TGIF yesterday!
Yay for weekends!!! It was nice to be able to sleep in somewhat this morning. 7 am.. I would have liked to sleep later but my back woke me up.And my knees. It's been so cold and damp, I am creaky and achy all over! LOL
And I was in bed at 8:40 and lights out a bit after 9- how sad am I??
Its like I am 81, not 41
Quick run down from the dr appt yesterday.
The easy one first: Cait is doing *great* she doesn't have to go back for 4 months. He is considering her to be in "remission" and if she can get through the next 4 month w/o symptoms, he can feel comfortable saying that she is cured and Lyme free!
Scott. *deep breath*
He is really sick.
Dr B said that the bacteria is attacking his central nervous system. Last time we were in, he was supposed to go on one particular antibiotic for the CNS. The insurance denied it, (grrrr) and he was put on another- and it doesn't work as well. So after 2 months, the bacteria is flooding his CNS- which is causing all of the behavioral/cognitive issues.
We have a couple of options for treatment- a new abx that crosses into the brain (Gary and I have had some very good success with it), Bicillan shots or IV Rocephin.
We had to rule out the IM shots- he doesn't have enough meat on his butt for them.
We are starting w/ the minocycline- working up to a high dose and we go back in 6 weeks. We don't know if the insurance would cover IV, since they wouldn't cover for me. And of course there is risks in IV.
The down side to all of this is that if these meds work, they can cause a pretty intense herx. Gary and I both had it- the mino kicked my butt for over a month but then I started to really feel a big difference.
We have to consider home instruction and or a Lyme-friendly psychiatrist to help keep the symptoms and CNS "calm" as possible while he herxes.
Its just brutal....
And to top it off- I get home and there is a msg from my GP to call them. There was something "off" on my mammogram and I have to get retested. They said it is probably nothing but a shadow but they have to be sure.
I am honestly not worried about it except for the fact that I have to try and fit this into my insane schedule!
And I am seriously peeved at my mom- who hasn't ever had a mammo- so when they ask me about family history, I don't know....
When I get the results back from this next test, I am going to lay into her.
So that was my day yesterday.
Aren't you all glad that you read it!?
(I swear, there are some days I see what I wrote and think that if *I* were reading this, I would wonder if this person, faerywings, was real or just some kid looking for attention)
Going to post this and then be back for personals
Yay for weekends!!! It was nice to be able to sleep in somewhat this morning. 7 am.. I would have liked to sleep later but my back woke me up.And my knees. It's been so cold and damp, I am creaky and achy all over! LOL
And I was in bed at 8:40 and lights out a bit after 9- how sad am I??
Its like I am 81, not 41

Quick run down from the dr appt yesterday.
The easy one first: Cait is doing *great* she doesn't have to go back for 4 months. He is considering her to be in "remission" and if she can get through the next 4 month w/o symptoms, he can feel comfortable saying that she is cured and Lyme free!
Scott. *deep breath*
He is really sick.

We have a couple of options for treatment- a new abx that crosses into the brain (Gary and I have had some very good success with it), Bicillan shots or IV Rocephin.
We had to rule out the IM shots- he doesn't have enough meat on his butt for them.

We are starting w/ the minocycline- working up to a high dose and we go back in 6 weeks. We don't know if the insurance would cover IV, since they wouldn't cover for me. And of course there is risks in IV.
The down side to all of this is that if these meds work, they can cause a pretty intense herx. Gary and I both had it- the mino kicked my butt for over a month but then I started to really feel a big difference.
We have to consider home instruction and or a Lyme-friendly psychiatrist to help keep the symptoms and CNS "calm" as possible while he herxes.
Its just brutal....
And to top it off- I get home and there is a msg from my GP to call them. There was something "off" on my mammogram and I have to get retested. They said it is probably nothing but a shadow but they have to be sure.
I am honestly not worried about it except for the fact that I have to try and fit this into my insane schedule!
And I am seriously peeved at my mom- who hasn't ever had a mammo- so when they ask me about family history, I don't know....
When I get the results back from this next test, I am going to lay into her.
So that was my day yesterday.
Aren't you all glad that you read it!?
(I swear, there are some days I see what I wrote and think that if *I* were reading this, I would wonder if this person, faerywings, was real or just some kid looking for attention)
Going to post this and then be back for personals
