TGIF! Can I get an :amen:??
I did NOT want to get out of bed this morning. Not one bit. Looooong day yesterday and even though I napped, it took everything out of me. I was hoping to be home by noon? Did not happen. We got back home at almost 1.30. Did my "morning" IV (so we were a little late
), grabbed lunch and went to bed. Gary made frozen pizzas for dinner and I am so thankful for him doing that. He has actually been quite helpful since my diagnosis. Before it, he would cook if I asked him, and rarely got up to take the kids to the bus. I guess being so sick himself, he never saw or realized that I was in bad shape myself. I thinked him for doing something yesterday and he said that he would do whatever he could to make this easier for me. He even said that he was so sorry that I had to drive to the hospital every day (as we sat in traffic ugh). The hospital is about 35 mins away, no traffic, 45 if there is rush hour traffic and 30 mins if your son had the tip of his finger cut off or your husband is having chest pains. hahahah!!ound:
The rads techs are now calling me "Spunky" b/c I am so cheerful and bouncy in the mornings. I told my kids they said that and they *laughed*-- they know I am not cheerful in the mornings but by the time I get there I have consumed several cups of coffee. So maybe coffee jitters make me bounce? LOL
Then off to Lyme dr- which went kind of as expected. She doesn't want me working at all. I knew she would say that. But I told her that I need to feel like I am doing something so we compromised that I am only allowed to clean one house a week. I have two small houses in one week so I asked if I could count them as one, and she lectured me that if I don't give my body time to heal that I'll never get better b/c my immune system will be on the floor.
but here was some good news and then some great news! The "good" was that I *finally* tested positive on both ELISA and Western Blot. I had tons of bands light up, which means my body was finally recognizing the bacteria and producing antibodies. She is now going to start fighting with my ins co to cover my treatment since I now fall into that CDC positive category. I am sure my ins co will find some way to get out if it but ya never know?
The great news-- someone had donated Claforan and syringes. There is only one other patient on Claforan and she is covered by ins so they gave me the whole box-- almost 2 months worth of meds. I almost cried right then and there. All I am going to need to buy are saline flushes. Just incredible. Gary always tells me when I get down, that things always work out in the end. And they really do.
And now- I am late. But since I am not working (yay!) I will have some more time later to check back.
Love you all!
I did NOT want to get out of bed this morning. Not one bit. Looooong day yesterday and even though I napped, it took everything out of me. I was hoping to be home by noon? Did not happen. We got back home at almost 1.30. Did my "morning" IV (so we were a little late
), grabbed lunch and went to bed. Gary made frozen pizzas for dinner and I am so thankful for him doing that. He has actually been quite helpful since my diagnosis. Before it, he would cook if I asked him, and rarely got up to take the kids to the bus. I guess being so sick himself, he never saw or realized that I was in bad shape myself. I thinked him for doing something yesterday and he said that he would do whatever he could to make this easier for me. He even said that he was so sorry that I had to drive to the hospital every day (as we sat in traffic ugh). The hospital is about 35 mins away, no traffic, 45 if there is rush hour traffic and 30 mins if your son had the tip of his finger cut off or your husband is having chest pains. hahahah!!ound:The rads techs are now calling me "Spunky" b/c I am so cheerful and bouncy in the mornings. I told my kids they said that and they *laughed*-- they know I am not cheerful in the mornings but by the time I get there I have consumed several cups of coffee. So maybe coffee jitters make me bounce? LOL
Then off to Lyme dr- which went kind of as expected. She doesn't want me working at all. I knew she would say that. But I told her that I need to feel like I am doing something so we compromised that I am only allowed to clean one house a week. I have two small houses in one week so I asked if I could count them as one, and she lectured me that if I don't give my body time to heal that I'll never get better b/c my immune system will be on the floor.
but here was some good news and then some great news! The "good" was that I *finally* tested positive on both ELISA and Western Blot. I had tons of bands light up, which means my body was finally recognizing the bacteria and producing antibodies. She is now going to start fighting with my ins co to cover my treatment since I now fall into that CDC positive category. I am sure my ins co will find some way to get out if it but ya never know?
The great news-- someone had donated Claforan and syringes. There is only one other patient on Claforan and she is covered by ins so they gave me the whole box-- almost 2 months worth of meds. I almost cried right then and there. All I am going to need to buy are saline flushes. Just incredible. Gary always tells me when I get down, that things always work out in the end. And they really do.
And now- I am late. But since I am not working (yay!) I will have some more time later to check back.
Love you all!
