Ouch. It hurts to write that.
Actually, it just hurts. All of it, all of me. I struggled yesterday. I was just so emotionally devastated at how high my pain levels were and my brain was like sludge, and the fatigue... I can't describe how it feels physically, but the emotional/mental distress about how I was doing seems to hurt more than anything. I know that I have good days and not so good days but this one was one of my worst in a long time.
I never thought that I would say this, but I cannot wait to get my IV abx started tomorrow. hahah!! I do wonder if/how badly I will herx, but if I do (and I hope that I do) I will know this pulsing protocol is working.
I apologize for speaking in a different language. I know when my BBF/BFFATS ask about it, they try very hard to follow but it's hard. Hard for me and I live it!LOL
I think I am feeling a bit better today, since I slept better. Gary's restless legs were really bad the night before. Between him twitching non-stop and me rolling from hip to hip to ease the pain, we were bad pair. He slept on the couch last night so we wouldn't wake each other.
I got a lot of paperwork done yesterday- 3 out of 4 forms that I mailed were to the Govt. I asked Gary -- of those 3, how many are going to get bumped back to me for more information? 3 out of 3. I did write a somewhat snarky cover letter to the Healthcare.gov Marketplace. I ran through the situation but when I got to my experience with the CS Rep, I kinda let loose. So all of my forms are uploaded as well as in the mail. And to think, in November, I have to reapply, with this same information, And-- in January, when Gary gets his cost of living increase (if he gets one)for his Disability payment, I get to do it all over again! yipppppeeeee!!!!
:frusty:
I have said it before and I'll say it again, there *has* to be an easier way!!!!!
I never made it to the lake yesterday which was a bummer. If all goes as planned today, Caitlyn and I are getting our hair done by my cousin.The last time I got my hair cut and colored was last November. It is pretty scary to see what it on my head. I should take before and afters
I haven't done this in a while but here is a QOTD
What makes you laugh-- the kind of deep belly laugh that ends up with sorts or tears?
Since we got Jaida, it is hysterical watching her be a total goof. She still does the somersault thing with her butt in the air, and her head on the floor. Last night she was a maniac catching her tail. ound:
Both of my kids have wicked senses of humor and they always make me laugh.
Jon Stewart. Stephen Colbert. George Carlin. I Love Lucy. The Christmas Story.
Can't wait to hear what makes you laugh.
Actually, it just hurts. All of it, all of me. I struggled yesterday. I was just so emotionally devastated at how high my pain levels were and my brain was like sludge, and the fatigue... I can't describe how it feels physically, but the emotional/mental distress about how I was doing seems to hurt more than anything. I know that I have good days and not so good days but this one was one of my worst in a long time.
I never thought that I would say this, but I cannot wait to get my IV abx started tomorrow. hahah!! I do wonder if/how badly I will herx, but if I do (and I hope that I do) I will know this pulsing protocol is working.
I apologize for speaking in a different language. I know when my BBF/BFFATS ask about it, they try very hard to follow but it's hard. Hard for me and I live it!LOL
I think I am feeling a bit better today, since I slept better. Gary's restless legs were really bad the night before. Between him twitching non-stop and me rolling from hip to hip to ease the pain, we were bad pair. He slept on the couch last night so we wouldn't wake each other.
I got a lot of paperwork done yesterday- 3 out of 4 forms that I mailed were to the Govt. I asked Gary -- of those 3, how many are going to get bumped back to me for more information? 3 out of 3. I did write a somewhat snarky cover letter to the Healthcare.gov Marketplace. I ran through the situation but when I got to my experience with the CS Rep, I kinda let loose. So all of my forms are uploaded as well as in the mail. And to think, in November, I have to reapply, with this same information, And-- in January, when Gary gets his cost of living increase (if he gets one)for his Disability payment, I get to do it all over again! yipppppeeeee!!!!
:frusty:
I have said it before and I'll say it again, there *has* to be an easier way!!!!!
I never made it to the lake yesterday which was a bummer. If all goes as planned today, Caitlyn and I are getting our hair done by my cousin.The last time I got my hair cut and colored was last November. It is pretty scary to see what it on my head. I should take before and afters
I haven't done this in a while but here is a QOTD
What makes you laugh-- the kind of deep belly laugh that ends up with sorts or tears?
Since we got Jaida, it is hysterical watching her be a total goof. She still does the somersault thing with her butt in the air, and her head on the floor. Last night she was a maniac catching her tail. ound:
Both of my kids have wicked senses of humor and they always make me laugh.
Jon Stewart. Stephen Colbert. George Carlin. I Love Lucy. The Christmas Story.
Can't wait to hear what makes you laugh.