Good morning and Happy Tuesday that feels like a Monday. 
Here's to a stress-free week coming up! One can hope, right? One day down at least and while it was another long long day, we got good(ish) news and bad(ish) news.
Bad news is that Cait is having another relapse. I am not surprised, but I when you see it all laid out for the dr, all of the little ailments she has had add up to one big relapse.I am damn tired of relapses. So is she, esp after about 10 vials of blood drawn to go to three different labs,
And even though she is 14, I sitll have to hold her hand tight throughout the whole thing. She is back on handfuls of meds, but not as much as she had been. He thinks we caught it early enough that it might only take a few months of treatment to beat it back down. (Again.)
Good news (for now) is that Scott seems to be holding steady. I think he has more symptoms than he is letting on, so we'll have to see what his blood work comes back with. He has had a very high HHV6 viral titer in the past that seems to correspond with a lot of his symptoms so if that is elevated again we will know his immune system is struggling a bit.
Cait goes back in 6 weeks, Scott in 12 weeks. March will be our 5 year anniversary of seeing the kids' dr. Jan. was my 5 year anniversary with my dr and Gary has been seeing his dr for 6 years..... between the 4 of us, we have logged 21 years of treatment. That's messed up, right?
Oh!! One other little bit of a glimmer of hope.... when I called Gary from the road yesterday he said that he was bored. The day before was also complaining of being bored. That means (at least to my mind) that he has to be feeling slightly better-- good enough to recognize that he is bored. When I got home he has some guitar equipment out- so good to see him playing a bit again. I have no idea how long that will last but I'll take any little bit of good I can get!!!
Tip On Tuesday
Don't get bit by ticks....

Here's to a stress-free week coming up! One can hope, right? One day down at least and while it was another long long day, we got good(ish) news and bad(ish) news.
Bad news is that Cait is having another relapse. I am not surprised, but I when you see it all laid out for the dr, all of the little ailments she has had add up to one big relapse.I am damn tired of relapses. So is she, esp after about 10 vials of blood drawn to go to three different labs,

Good news (for now) is that Scott seems to be holding steady. I think he has more symptoms than he is letting on, so we'll have to see what his blood work comes back with. He has had a very high HHV6 viral titer in the past that seems to correspond with a lot of his symptoms so if that is elevated again we will know his immune system is struggling a bit.
Cait goes back in 6 weeks, Scott in 12 weeks. March will be our 5 year anniversary of seeing the kids' dr. Jan. was my 5 year anniversary with my dr and Gary has been seeing his dr for 6 years..... between the 4 of us, we have logged 21 years of treatment. That's messed up, right?
Oh!! One other little bit of a glimmer of hope.... when I called Gary from the road yesterday he said that he was bored. The day before was also complaining of being bored. That means (at least to my mind) that he has to be feeling slightly better-- good enough to recognize that he is bored. When I got home he has some guitar equipment out- so good to see him playing a bit again. I have no idea how long that will last but I'll take any little bit of good I can get!!!
Tip On Tuesday
Don't get bit by ticks....