There. That is it. I can't hear it, I can't see it!
TGIF my O-zies! how are all of you today?
I am ok. Slept pretty good, I woke up once but was able to get back to sleep after a while. Having another yummy cup of coffee. Gary has been so god-awful sick inthe mornings, I told him to sleep in and I would get Cait off to school today. he didn't want too, but I was able to talk him into it.
Yesterday was really exciting and kind of a bummer at the same time. The filmmaker came by and we got to see some of the documentary. We saw Scott speaking a bit, and OMG-- he speech was horrible compared to what it is now. Speech issues are one of the neurological symptoms of Lyme- stuttering, word finding issues and the ever so funny random word substitutions. Everyone has these on occasion, but a neuro-Lyme sufferer has this in debilitation ways. (I even get this a lot when I type which can be amusing at times). We were all shocked to hear him speak. I guess it is like when you don't see your own baby getting bigger b/c you see him/her every day but someone will come to visit a week later and be amazed how much they have grown.
Scott still has speech issues but the difference between then and now was stunning and in some ways, pretty frightening. I think when you are living it, it is harder to see it all, but a video clip brings it all into focus.
The other ironic bit we happened to see is when I was speaking and I compared Lyme to cancer- I had said that no one would ever think that cancer was good, but that it is so difficult to get "recognition" (can't remember the exact phrase I had said)- with a cancer diagnosis. For ex. No one would say to a cancer patient that they were faking it, or that they looked to good to be sick, or to think positive and you will get better.
My family all looked at each other, since this was a year before my cancer diagnosis. I told the filmmaker that now having to deal with both diseases, cancer was a walk in the park. Again, my cancer was not the same as someone with lung/pancreatic/colon Late Stage, so I am not referencing that part. But my treatment as a cancer patient-the ability to get medical coverage, financial assistance, understanding from the medical profession- extremely different than as a Lyme patient.
The bummer was that he wasn't able to film me. He had run very late, not realizing how *big* my town is. heh!! The bummer wasn't that I didn't get filmed but that I blew my hair dry for NOTHING! bwuhahaha!!!
:rofl:
What is up for you all today? I have to pick Cait up from school as she is bringing home my electronic grandbaby today.
Other than that I have some stuff piling up on my desk that I really need to deal with and then-- I want to hang out here.
Have you seen this?? :: Oscraps Birthday Under the Big Top ::
arty:hope you all have a wonderful Friday!
