Daily Ooo's: Friday, April 3

[faerywings]

GooOd mOrning, O-zies!
I know I am a bit later than usual. Cait didn't have school today so I turned my alarm off and was able to grab an extra hour or so of sleep. When I woke up and got moving, I realized how absolutely awful I feel.
Was it really just yesterday that I said that Tindamax wasn't hitting me too badly?
Well, I guess it saved it all up for today.
I hurt, I am cranky and I have a god awful headache and upset stomach. I wish I could crawl back under the covers for the rest of the day, but that is not comfortable either.

My mom is coming up today to bring us her Italian Easter pie. Yum!!!! She wants to take me out to lunch. She has been trying to get me out of the house, but I have a hard time doing that lately.

I posted this on FB- it was a link to Yolanda Foster's blog and one sentence really struck me:

This is great blog post-- a big compliment coming from someone who hates "reality" TV. Best line for me-- "I am sending you lots of love from my healing cave " .... healing cave. Some days (most?) that is exactly how I feel. It is simply too exhausting and overwhelming to leave my house. But it doesn't mean that I don't think about my loved ones constantly. I am looking forward to the day that I can get up and out and spread the love face to face!

It was just a crazy-powerful line, and I hadn't thought about it that way, at least not consciously. So many times over the years, I would try to encourage Gary to leave the house. I didn't realize that sometimes it is just not worth the effort-- extreme effort- to do that, and the cost that it takes from your body and brain. I am getting it now. I think that I had just pushed and pushed myself for so long I ignored *everything*that was going on inside my body. I know I have said it here before that if I ever stopped moving, I would never be able to get back up again. I think that is where I am at now.
An ah-ha moment. Took me long enough.

Thanks for your support and listening to me. You guys are my therapists in some ways. I haven't blogged in ages and ages, but I think this is going to be refined into a blog post. If I get the energy to do that. If not-- it might just be a cut and paste

Anyway, that is enough Lyme-rambling from me. (For now. hahahah!) Don't think that you are going to get off that easyound:

What are you up to today? For those who celebrate Easter and Good Friday, do you have any special traditions? My mom would tell me how they would have to sit and pray from noon until 3pm on Good Friday when she was growing up. My grandfather owned a barber shop and he would close during those hours-- which was unheard of any other time. They weren't allowed food or water or even to move around during those hours.
When I was growing us up it was a "quiet time" but not anywhere near strict as that.
My mom used to make her Easter Pies on Good Friday but changed to the day before, since she couldn't even taste-test the filling.

I hope that you all have a very blessed day, no matter what and how you celebrate!
I'd better get going, if I am going to wash my hair and put on make-up in an attempt to look good (healthy-ish) for my mom. She usually sees right through it-- she goes by my eyes for the truth, but maybe someday after 46+ years, I can get it right LOL

Love and hugs!!

 

[faerywings]

From Thursday:

Laurie- were you able to get some yard work squeezed before the rain? I walked around my back yard for a couple of minutes, picked up some branches, peeked under some leaves to see if anything was coming up yet. A few little pops of green here and there. I hope that the weather stays warm so things can really start blooming.

Nancy- woohoo on the 2 good news-es. It got near 60 up here but the wind was cold! But I will take it!!!
Your trip to FL sounds wonderful!

Trudy- this weather has been insane! Some climate scientists are scrapping the terms Climate Change and Global warming for "Climate Chaos." Sounds like that one is much more appropriate lately.
I do NOT understand how "doctors" can ignore Lyme disease and its co-infections any more. There is so much independent and innovative research being done that proves it. I am so sorry that your friend might lose her house. If it weren't for my parents and IL's, we would be in the same boat.

*reading Megan's story*

No, it doesn't depress me. It ANGERS me!! It is so similar to my own family's story and the story of hundreds of thousands of people. The fact that we are not recognized, and are left on our own to figure this out, and to lose so much... It breaks my heart over and over again.
I wish her the best. I wish I could help. I wish there was a cure. i wish for many things. But that is all they can be right now-- wishes :sad:

Side note: I might have ranted about this last year but the difference between cancer dx's and Lyme dx's, the recognition, the assistance you get is tremendous. Having been on both sides of that coin, it is astounding. I might have commented when I was talking about Scott's part in the documentary-- there was a clip of me saying how-- while I would never wish cancer on anyone- I asked if any cancer patient would be treated the same way. This was well *before* had my cancer dx. It is ... I don't know-- I am at a loss for words, which is shocking enough *wink*

On a happier note-- I hope that you and your Gary have good weather for your sites seeing. :smile: Take lots of pics!!

Sharon-- hope that you have recovered from babysitting! I felt the same way when I would babysit Christopher, I would happily go home and rest!

 

[nancyr]

good morning - yesterday was awesome - went for a long walk and the temperature was in the 60s. I only needed a fleece jacket not my down jacket. It was awesome but it was still too windy! Today rain is supposed to come and I have a hockey game so not looking forward to walking in the rain. My team is play the Canadiens who lost yesterday so they will be unhappy today so that does not bode well for my team LOL. I am down to just one more page to do for the birthday challenge. So I will work on that today.

Chris so sorry the effects on the tindmax are hitting so hard today. Enjoy the time with your mom.

Sharon my sister feels the same way when she is done babysitting her grandkids. Hope you are recovered today.

Laurie how fast did the rain come. Longer or shorter than the 87 min?

Trudy Congrats to Boston coming back and defeating Detroit. That was amazing! And that is such a sad story about Megan.

Have a great day all!

 

[taxed4ever]

Morning my "O" family!! I am watching the clouds roll in across the valley, big black rain filled clouds, so I guess it will be another day of inside work. No yard work :sad: We are going to bottle some wine and then take it up to the In-Laws tomorrow. We are helping them to get their gutters and windows cleaned and then a yummy dinner of Ham and scalloped potatoes and I am sure 3 or 4 other side dishes :becky: MIL loves to cook, too bad she is not a very good one :sad: I know that sounds mean, but she has never been much of a cook really, she can bake circles around anyone, but meals well....MEH!!

Chris - Oh Sweetie, I wish I could do something to make it all just go AWAY!!!!! You are so brave for putting on a happy face and trying to keep your life going, when inside you are hurting so very much!! :hug: This is all I can do for you right now. I hope your lunch with your Mother brightens your day and you really must share the recipe for your Mom's Easter Pie!! You are so right about the difference between Lyme patients and Cancer patients, although you would never wish Cancer on anyone, you know that they will get the best of care!!

Nancy - Hopefully the rain will not deter you from your walking today! If it is a warm rain then it is not so bad, but if its cold, well that can be plain miserable!! Yes hubby was cheering loud when the Bruins came back and beat Detroit!

Sharon - One trip to watch our grandkids while the mom and dad were in Paris together, was a disaster!!! We all ended up with the flu with everyone being very sick and vomiting all over the place uke: Let me tell you, we were exhausted after that week and I think it took us a month to recuperate!! :becky: They tire you out at the best of times but when you are all sick it is truly disastrous!! LOL

Looking forward to our Sunday drive and picnic, keep your fingers crossed for us that we have some good weather for it at least! Happy Good Friday everyone! :wave:

 

[LaurieW]

Good afternoon O fam- I did get the front beds weeded and the rain initially was more sprinkles. It is raining again today. I do not gather much energy from the cloudy days. I think I need to scrap- I really need to grocery shop, however do not have the energy for that- at least not now, maybe after scrapping and lunch!!