Update on my condition.

[Mary Davies]

Hi Everyone this is an update on my condition I will try to keep it short ...I received a letter today from the specialist who has now diagnosed me with liver disease please do not think it is through drinking as I don't drink alcohol it is called PBC... Primary Biliary Cholangitis he said I will be on the 6 a day pills for the rest of my life which depresses me as some of the side effects are not very nice the meds will hopefully prevent further damage to my liver I have to have regular blood tests the next one is in July to see if the meds are helping.
This is what it means
Primary biliary cirrhosis (BIL-ee-air-ee sur-ROH-suhss)
The immune system slowly destroys the liver's bile ducts. Bile is a substance made in the liver. It travels through the bile ducts to help with digestion. When the ducts are destroyed, the bile builds up in the liver and hurts it. The damage causes the liver to harden and scar, and eventually stop working.

 

[AZK]

Thanks for updating us, Mary. While the news isn't as good as what I'm sure you were hoping for, I have to think that at least knowing what the problem is must come somewhat as a relief.

 

[taxed4ever]

Mary... I am sure you were hoping for better news, but hopefully the meds will stop any further damage to your liver! Hoping that the medication does not make you feel too bad, sending you lots of positive healing thoughts! :hug:

 

[Nickel]

I'm really sorry for you, I hope that the meds do their work

 

[Vicki Robinson]

Big, big hug Mary!

 

[Mary Davies]

Thank you Everyone.x

 

[Jeannette]

Not the best new, but I do hope the meds will help and the side effects wont be too strong. Sometimes you have to choose between two, neither very fun, options.
For me the chemo cured me, but also gave me neuropathic feet for which I have to use meds for the rest of my life. Luckily I can deal with the side effects of these meds.
The chemo also gave me irritable bowel syndrome (hope I say this right). I sometimes really have a hard time, but I'm alive and I cherish every day.

I really hope your disease will not mess up your life, and you can cope with the side effects. There is so much beauty in life and so much worth living for!
I'm sure you understand what I mean

 

[timounette]

Oh, it's not great news, but the bottom line is there is a cure. So it doesn't matter if it's six pills or even ten.
Cheer up and let us know

 

[Mary Davies]

Thank you everyone for your kind messages and support although there is no cure the meds will prevent the condition from worsening.

 

[faerywings]

I am sorry that this isn't great news at all. But I hope that in spite of the side effects, the meds help you feel better overall. Hugs!

 

[marijke]

big hugs Mary ... this is not the news you expected ... hopefully the medications can help you and you don't bother too much about the side effects ...

 

[Danesa]

Big hugs, Mary! I'm hoping & praying your symptoms from the meds will be non=existent and that the medicines help your liver.